Main Issues Faced by Intersex People in Healthcare

  • Lack of knowledge around intersex lives
  • Difficulty in finding intersex-specific health services
  • Lack of information for both parents of intersex children and intersex persons
  • Widespread assumptions that intersex status is an illness which requires “fixing”
Issues faced by Intersex People in the EU in Healthcare (FRA LGBTI Survey 2020: Intersex Specific Questions)

Only 14% of all respondents have received specific diagnosis and relevant information about their variation of sex characteristics from the health service

Over half of the respondents have received determination of variation of sex characteristics by a health professional in an age when they were not capable of independent decision regarding their self-determination (before birth – 3%; in childhood – 14%, in adolescence -34%)

22% of all respondents have received medical treatment to modify their sex characteristics

21% have received the above medical treatment at the age of 5 or less

2020 On Clinical Guidelines: Important things to understand

The linked policy briefing considers whether or not guidelines are enough to ensure medical interventions on infants, children and adolescents with intersex variations conform to human rights norms, and eliminate harmful so-called “normalising” interventions.

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